Monday, October 25, 2010
MS Walk 2010
Feel free to invite friends and family to the walk. The link on the right hand side of this page under Join Christy's Team will take you to the walk registration.
It's a wonderful walk through the Phoenix Zoo and includes all day admission to the zoo!!! There is no charge to join us for the walk and your support through donations, walking, or just being with us in spirit that day are all appreciated.
Hope to see you there!!
Monday, November 10, 2008
What a WONDERFUL WALK
This walk is indeed more of a stroll than a walk. That gives for the most amazing opportunity to just be with and visit with those that we know and love.
We are already full of ideas and excited about next year!!! YEP! Next year!!!
But first - we are going to take a break for the holidays!
Next year we hope to have a few FUNdraisers - and who better than the Baranowsky's to put the FUN in FUNdraiser?!?!?!
We are looking forward to a STAMP out MS - paper crafting event, a dinner/silent auction, more support from corporate sponsors, and the yard sale!
We will get an update to you on the money we raised as soon as all of it is updated and tallied. People were donating right up to the last minute!
Wednesday, November 5, 2008
WE GOT A TENT!!!
Our team
Christy's Mission Squad
won a tent for the walk!
Registration Starts at 6:30 AM
Walk begins promptly at 8:00
Please try to be there by 7:15!!!!
That will give us enough time to check in and get a
GROUP PICTURE!!!!
(This is a treasure that Christy did not get last year.
We REALLY want to make sure that we have one for her this year!!!!!!)
If you are walking with us, the start/finish line is located at SRP's headquarter parking lot at:
1600 N. Priest Dr.
Tempe, AZ 85281
Free parking is available across from the start/finish line at the Phoenix Municipal Stadium Parking Lot.
Directions to Phoenix Municipal Stadium Parking Lot:
Loop 202 to Priest Drive; north on Priest to Project Drive (1 block south of Van Buren Street); go west on Project Drive to parking lot.
When you arrive at the parking lot, it will be really easy to see where to go. (It really is simple - a "no brainer" - we were sort of all freaked out about it last year...really - super easy!)
Once you enter the area where the walk is, because we have a TENT, (yeah us!) there will be a special place for our team to check in back by the tents. Our Christy's Mission Squad banner will be on our tent.
If you have any trouble locating us, please just call Deanna at 480-221-8794, or Christy at 480-203-3809. We are usually not a very difficult group of people to find. :)
Be sure to wear your shirt if you already have one. If not, we will be handing them out as soon as you get there. If you did not get a shirt ordered, please try to wear PINK!
We are SO excited to be walking with you this year.
Thanks for joining us!!!
Deanna
Christy's Mission Squad
"Team Mom"
Wednesday, October 22, 2008
LETS GET A TENT!
The TENT is the greatest thing! It gives us a place to Meet and Greet before and after the walk, makes registration easier, and even supplies us with much needed SNACKS! :)
To sign up to walk, or to donate, just click on the link on the right hand side of the page - JOIN CHRISTY'S TEAM.
Hope to see you all there!
Saturday, October 18, 2008
Stories and UPDATES
This morning I was sending an email to a dear friend who I have not been in contact with for quite some time. As I started to get her caught up on our last couple of years, the email began to read like a book. LIGHT BULB - I will just put Our Stories and the Update on Christy on the Christy's Mission Squad Blog, and she can go there and get all up to speed on this part of our life.
So - below are Our Stories which were posted on the National MS Society website. I decided to include the Update on Christy that I sent out awhile back. People quite often ask about Christy. What a way to keep everyone in the loop - a BLOG! WOW - just gotta LOVE this concept.
Love to you all!!!
Deanna
Update on Chrsity
And for the most part, I would agree that is what I see.
The heat is a HUGE issue here in Arizona where 110-degree days are not uncommon and the summer seems to never end. Some days are worse than others, and those are the days that you will never hear a complaint from Christy unless you can read her face – like only a mother can.
The past year has been a mixture of blessing and concern. We are indeed blessed that Christy has had no major episodes with her MS!!! But the daily grind of the disease is evident. It’s like the hurricane has not come in, but the waves are constantly pounding at and eroding the shore.
We found an AWESOME neurologist this year thanks to our dear friend Mary Ann!! For that, we are so blessed. Our PA – Sabrena, who initially diagnosed this disease, continues to be an ongoing source of answers and support. With MS, you are never quite sure if what is going on with you is the MS or something else. Having her on our “TEAM” is an invaluable gift!
The once weekly shot that Christy takes – Avonex seems to be beginning to take its toll on her. For the last 4 or 5 weeks, the shot process and the “flu like” symptoms have really seemed to escalate. We are working towards a better solution for that.
Christy’s body aches more and more all the time. Right now she is dealing with a lot of pain in one of her feet. Is that the MS? Or is it something else? The aches, the pains, the cognitive issues, the fatigue...they are all just part of MS each and every day.
OK – enough about Christy! What about ME? HA!
I WANT TO FIND A CURE FOR MS!!!! In this year, we have had the opportunity to not only meet, but also really get to know and become friends with many others that have this devastating disease. A real awakening comes every 2 months in our “No Boys Allowed” evening. (Sponsored by the MS Society...I’m telling you...this group is amazing and GREAT!) Here we are in a room with 50 or more ladies all living with MS. Some of them walk unassisted, and a great many others are in wheelchairs. What a double-edged sword this night is for me. I LOVE the women! I LOVE their courage! I LOVE their humor! The camaraderie and the friendship are priceless. I HATE MS. I hate seeing the probable future for my daughter in the hearts, eyes, souls, and wheelchairs of these women.
I am in a race! I am in a race to do everything I can to help MS be cured before it can take my daughter to that point. Research is the key – and there is lots of it going on thanks so much to so many of YOU who donate you time, prayers, and money to the MS Society.
I watched Senator Barack Obama and Senator John McCain come together last night as they spoke about National Service. What I heard last night was that through sharing, caring, and work, much could be accomplished.
The MS Society is all about that. Their service to us this year has educated and brightened our lives in so many ways. Many others share in this blessing.
Thanks for taking the time to read an update about Christy. Thanks for caring. Thanks to all of you for being there for us!!!
Lots of Love!!!
Bob and Deanna Baranowsky
That makes Bob and Deanna Grandparents!
Welcome to Anthony Baranowsky
And Congratulations to Eric and Jennifer!
Christy's Story
On May 24th, after a month of testing and uncertainty, our initial fears were confirmed. I was diagnosed with MS. It was then I began a journey that I could have never imagined.
A significant loss of my eyesight - literally overnight, a left hand that just would not do what my brain would tell it to do, and the left side of my face drooping, were greatly improved with an initial IV treatment of steroids administered from my home. Oh my gosh - Is this REAL? Is this going to be my life? Those were some of the thoughts and questions I was dealing with.
I began Avonex treatment which is a once weekly intramuscular injection that leaves me with minor flu-like symptoms, fatigue, and basically takes me away from my life for about 24 hours.
As the Arizona summer heat rose to the 110 degree mark, the effects on my MS were overwhelming. Fatigue simply took over my life. A walk from the car to the grocery store became practically impossible. The doctor provided me forms to receive a handicapped placard for my car, and when I noticed that it was marked “permanent”, another little piece of my reality sunk in.
That seems to be how this journey is. A little piece of reality followed by another. I deal with and learn more about MS each and every day of my life.
Like many people with MS will tell you...some days are just better than others. I didn’t really understand that until I began to live it.
Research into MS promises hope for a CURE!!! Please join me on my MISSION to raise money for a cure.
Your support in walking, donating, or keeping me in your prayers are all valued gifts to me.
Christy Baranowsky
Team Captain
CHRISTY’S Mission Squad